A Good Man gets a Bad Break 
20th May 2007
In a dusty little corner of Dumangas, you will find the CC Tech Internet cafe. CC Tech was the internet place to be when I first volutneered in Dumangas.
You could always be assured of a warm welcome by the owners, Beth
and Jun. The slow internet speed was not such a problem when you had
good people to talk to.
It was with much joy then when I returned to Dumangas
to pay Beth and Jun a visit. Beth was there and was her normal
lovely self. Over the coming days, she seemed to be forever
giving me coffee, watermelon, siopao... Jun however, was not
present. As I mentioned way back here,
Jun was having terrible problems with his nerves that caused his body
to twitch uncontrolably. It was so bad, that Jun had to stop
working.
What Jun technically has is X-Linked Dystonia-Parkinsonism (XDP).
XDP - as I understand it - causes muscles to involuntarily
contract. This makes life very hard for Jun. Walking,
keeping his eyes open and just functioning normally are a real trial
for Jun.
Jun is currently in the U.S.A. receiving treatment. He gets botox* shots every now and then to relax his muscles and reduce the tremors. This helps treats the symptons, but is not a cure.
What Jun really needs is treatment called Deep Brain Stimulation (DBS) that should cure him of his XDP.
Little Michael Sharpe of the U.S.A. also had XDP and underwent
the DBS process with stunning results. He use to look and walk
like a hunchback, now he is just a normal everyday kid. A video
about Michael and his turnaround can be found here.
The problem for Jun is the cost of his treatment: $US60,000!
Not a small sum for anyone in the world, yet alone the owner of a
small internet business in a small rural town in the Philippnes.
Jun has set up a website
where you can find a heap of information about him and the struggles he
faces. Through the website you can also make donations that will
help Jun receive the treatment he do despertaly needed.
I encourage you to log on and make a donation.
Jun is a good man given a bad break. You can help make Jun just a good man.
*Yes, that same drug that celebrities and the vain get to reduce wrinkles.
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2005, 2006 and 2007 Malcolm Trevena.
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